Comments on: Cautious Optimism in Response to ‘Cure’ For Multiple Sclerosis http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/ The Future Is Here Today...Robotics, Genetics, AI, Longevity, The Brain... Fri, 10 Feb 2012 11:31:49 +0000 hourly 1 http://wordpress.org/?v=3.1.4 By: kiwidad http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-52228 kiwidad Sat, 31 Dec 2011 00:33:43 +0000 http://singularityhub.com/?p=9661#comment-52228 Hi Thanks for the informative post and I do find it very interesting. I have been living with MS for the past ten years. I find this article very interesting because it seem that iron in the brain might be a cause for MS? Just a few thoughts that come to mind and that I would like to share: 1.If iron in the blood is the culprit, then why are more women than men diagnosed with MS. It is a common fact that women need to supplement their Iron levels because of the fact they lose iron when bleeding. Theoretically speaking they should have lower iron levels than men. 2. Interestingly enough, before I had my first symptoms of MS, I had problems with fatigue. After a visit to the doctor and a few blood tests, the only thing that showed, was that the iron levels in my blood samples were really low. A very uncommon occurrence in men. Just wondering if perhaps low levels of iron may be a factor to people getting MS? Hi
Thanks for the informative post and I do find it very interesting. I have been living with MS for the past ten years. I find this article very interesting because it seem that iron in the brain might be a cause for MS?

Just a few thoughts that come to mind and that I would like to share:

1.If iron in the blood is the culprit, then why are more women than men diagnosed with MS. It is a common fact that women need to supplement their Iron levels because of the fact they lose iron when bleeding. Theoretically speaking they should have lower iron levels than men.
2. Interestingly enough, before I had my first symptoms of MS, I had problems with fatigue. After a visit to the doctor and a few blood tests, the only thing that showed, was that the iron levels in my blood samples were really low. A very uncommon occurrence in men.
Just wondering if perhaps low levels of iron may be a factor to people getting MS?

]]> By: Jessica Forester http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-47215 Jessica Forester Fri, 01 Jul 2011 10:15:46 +0000 http://singularityhub.com/?p=9661#comment-47215 After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.” Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. www.youtube.com/watch?v=jFQr2eqm3Cg. Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”. Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”. Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy. After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.”
Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. http://www.youtube.com/watch?v=jFQr2eqm3Cg.
Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”.
Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”.
Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy.

]]> By: Cure For Multiple Sclerosis? Controversial Liberation Procedure Moves Forward | Singularity Hub http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-23222 Cure For Multiple Sclerosis? Controversial Liberation Procedure Moves Forward | Singularity Hub Tue, 13 Jul 2010 15:41:05 +0000 http://singularityhub.com/?p=9661#comment-23222 [...] those who haven’t read our previous two stories on the matter (here and here), Zamboni’s theory identifies poor blood drainage from the brain as the primary culprit [...] [...] those who haven’t read our previous two stories on the matter (here and here), Zamboni’s theory identifies poor blood drainage from the brain as the primary culprit [...]

]]> By: ‘Cure’ for Multiple Sclerosis Verified in Latest Research, Trials Coming Soon | Singularity Hub http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-15018 ‘Cure’ for Multiple Sclerosis Verified in Latest Research, Trials Coming Soon | Singularity Hub Tue, 23 Mar 2010 03:44:11 +0000 http://singularityhub.com/?p=9661#comment-15018 [...] few months ago we mentioned how Paolo Zamboni developed an amazing possible “cure” for Multiple Sclerosis (MS) that’s based on a radical new theory of what causes the condition. There has been [...] [...] few months ago we mentioned how Paolo Zamboni developed an amazing possible “cure” for Multiple Sclerosis (MS) that’s based on a radical new theory of what causes the condition. There has been [...]

]]> By: zijad sabovic http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11413 zijad sabovic Sun, 13 Dec 2009 02:40:34 +0000 http://singularityhub.com/?p=9661#comment-11413 Question: Why veins in the brain are with strictures? Question: Why veins in the brain
are with strictures?

]]> By: zijad sabovic http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-32266 zijad sabovic Sun, 13 Dec 2009 02:40:00 +0000 http://singularityhub.com/?p=9661#comment-32266 Question: Why veins in the brain are with strictures? Question: Why veins in the brain
are with strictures?

]]> By: Mark http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11404 Mark Sat, 12 Dec 2009 20:07:10 +0000 http://singularityhub.com/?p=9661#comment-11404 Yes Ami you can come visit us at the link and ask any questions you like. Yes Ami you can come visit us at the link and ask any questions you like.

]]> By: Mark http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-32265 Mark Sat, 12 Dec 2009 20:07:00 +0000 http://singularityhub.com/?p=9661#comment-32265 Yes Ami you can come visit us at the link and ask any questions you like. Yes Ami you can come visit us at the link and ask any questions you like.

]]> By: Michael Hayes http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11339 Michael Hayes Thu, 10 Dec 2009 16:22:29 +0000 http://singularityhub.com/?p=9661#comment-11339 As far as this being a cure for MS I think that does need to be further researched. As far as it allowing improved blood circulation to my brain I am ready for it right now. That would seem to be common sense. If I have restricted flow to my brain I would like that fixed immediately. What would be the harm in that. I will stay on my MS meds until it is further determined that this procedure has cured my MS or not. Keep it simple folks! As far as this being a cure for MS I think that does need to be further researched. As far as it allowing improved blood circulation to my brain I am ready for it right now. That would seem to be common sense. If I have restricted flow to my brain I would like that fixed immediately. What would be the harm in that. I will stay on my MS meds until it is further determined that this procedure has cured my MS or not. Keep it simple folks!

]]> By: Michael Hayes http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-32264 Michael Hayes Thu, 10 Dec 2009 16:22:00 +0000 http://singularityhub.com/?p=9661#comment-32264 As far as this being a cure for MS I think that does need to be further researched. As far as it allowing improved blood circulation to my brain I am ready for it right now. That would seem to be common sense. If I have restricted flow to my brain I would like that fixed immediately. What would be the harm in that. I will stay on my MS meds until it is further determined that this procedure has cured my MS or not. Keep it simple folks! As far as this being a cure for MS I think that does need to be further researched. As far as it allowing improved blood circulation to my brain I am ready for it right now. That would seem to be common sense. If I have restricted flow to my brain I would like that fixed immediately. What would be the harm in that. I will stay on my MS meds until it is further determined that this procedure has cured my MS or not. Keep it simple folks!

]]> By: Ami Colon http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11211 Ami Colon Mon, 07 Dec 2009 20:55:09 +0000 http://singularityhub.com/?p=9661#comment-11211 Are there any cases where this procedure didn't work? And is there a way to find the patients to and ask them how they reacted to it? Also, did anyone die from it? My fiance was diagnosed with MS in 2008 and he's very interested in this procedure. I just need to know (as a very concerned caregiver and soon-to-be wife) if this could kill him and if it'll work. I don't want him to get killed or have his MS exacerbated even more. Anyone have any info? Ami Are there any cases where this procedure didn’t work? And is there a way to find the patients to and ask them how they reacted to it? Also, did anyone die from it?

My fiance was diagnosed with MS in 2008 and he’s very interested in this procedure. I just need to know (as a very concerned caregiver and soon-to-be wife) if this could kill him and if it’ll work. I don’t want him to get killed or have his MS exacerbated even more. Anyone have any info?

Ami

]]> By: Ami Colon http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-32263 Ami Colon Mon, 07 Dec 2009 20:55:00 +0000 http://singularityhub.com/?p=9661#comment-32263 Are there any cases where this procedure didn't work? And is there a way to find the patients to and ask them how they reacted to it? Also, did anyone die from it? My fiance was diagnosed with MS in 2008 and he's very interested in this procedure. I just need to know (as a very concerned caregiver and soon-to-be wife) if this could kill him and if it'll work. I don't want him to get killed or have his MS exacerbated even more. Anyone have any info? Ami Are there any cases where this procedure didn’t work? And is there a way to find the patients to and ask them how they reacted to it? Also, did anyone die from it?

My fiance was diagnosed with MS in 2008 and he’s very interested in this procedure. I just need to know (as a very concerned caregiver and soon-to-be wife) if this could kill him and if it’ll work. I don’t want him to get killed or have his MS exacerbated even more. Anyone have any info?

Ami

]]> By: F. Banimahd http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11121 F. Banimahd Fri, 04 Dec 2009 22:05:00 +0000 http://singularityhub.com/?p=9661#comment-11121 wow! Took the words right out of my mouth wow! Took the words right out of my mouth

]]> By: F. Banimahd http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-32262 F. Banimahd Fri, 04 Dec 2009 22:05:00 +0000 http://singularityhub.com/?p=9661#comment-32262 wow! Took the words right out of my mouth wow! Took the words right out of my mouth

]]> By: coyotl http://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/#comment-11081 coyotl Thu, 03 Dec 2009 22:26:35 +0000 http://singularityhub.com/?p=9661#comment-11081 Fred, I do not know what the truth is. I don't believe that any of the MS societies, nevermind all of them, have dishonorable intent. But that doesn't mean I'm going to blissfully ignore the possibility that their are possible conflicts of interest that could influence what treatments or trials get attention. Like I told sage, I will judge by actions, not declarations of intent. Is that fair enough? All I care about is keeping my wife and my son safe from this disease that took her mother. Fred, I do not know what the truth is. I don’t believe that any of the MS societies, nevermind all of them, have dishonorable intent. But that doesn’t mean I’m going to blissfully ignore the possibility that their are possible conflicts of interest that could influence what treatments or trials get attention. Like I told sage, I will judge by actions, not declarations of intent. Is that fair enough? All I care about is keeping my wife and my son safe from this disease that took her mother.

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